Meet Jenny



I'm Jenny and I was diagnosed with Familial Adenomatous Polyposis at age 8. FAP is a hereditary rare disease that causes the development of hundreds to thousands of polyps throughout the gastrointestinal tract. An individual with FAP is guaranteed to develop cancer at some point in their lifetime, which is why preventative treatment is crucial. However, cancer is able to develop anywhere in the GI tract as well as other parts of the body with FAP.

My mother, grandfather, and countless great aunts and uncles also had FAP and GI cancers. My mother and I are the last survivors in our family with FAP and I hope to be the one to end FAP in my family.
At age 9, my polyps were starting to turn cancerous and removal of my colon with a temporary ileostomy was decided necessary. I experienced many complications and near death experiences the following year resulting in 4 more surgeries and I was left with an ileostomy for 6 years. After a routine colonoscopy and consultation with another surgeon, it was decided a straight pull-thru may be an option. At age 15, I had the straight pull-thru surgery and experienced life threatening complications from adhesions that resulted in another surgery for adhesions removal. My health slowly stabilized over the next 5 years. I was able to graduate with a Masters degree, I have maintained full time employment, and am enjoying life as well as discovering new challenges for myself everyday.

This is my journey with FAP: recounting memories and experiences, coping with life changes, tackling new challenges, and doing my best to continue to survive. When I was a child, I didn't know anyone else with FAP outside of my family. I hope you'll join me and together we can fight this disease.

Check out Life's a Polyp Shop
ALL Proceeds Donated to NORD
Familial Polyposis Research Fund


You can also read My Story with Destination X Ride

For a collection of my poetry works visit The Poetry Angel

9 comments:

  1. Great to see your picture here, you are beautiful.

    ReplyDelete
    Replies
    1. Yo are very inspirational, i was diag with MAP, similar to FAP but different gene! I will contine to follow your bogs/this site. I think we all need to cling on to one another through all the hardships involved. i am due total colectomy in the new year, i have three kids and that actually makes this whole thing much harder emotionally...i had bowel canc when i was preg with my last child..and that's when i found out!! Great!! but so glad people like you do these sites and writing, because it helps not be alone xxx

      Delete
    2. Thank you so much for your kind words! That's a lot you're dealing with. I wish you all the best.

      Delete
  2. This comment has been removed by a blog administrator.

    ReplyDelete
  3. All I will say is good on you!

    I have AFAP btw :)

    ReplyDelete
    Replies
    1. Thank you! :)

      Check out this guest post by Daniel Shockley who also has AFAP. Hope you enjoy it as well as the other posts available.

      http://lifesapolyp.blogspot.com/2015/03/a-mission-for-early-cancer-detection.html

      Delete
  4. Jenny, such an inspiration, warrior, student, scholar and I cannot find right words this very moment to say how impressed I am from reading over your family history and journey to 2016!
    Keep up the good fight and sending Peace with Light filled SONShine 💕

    ReplyDelete
    Replies
    1. Thank you so much for your kind words! It's my pleasure to share my story in hopes that it helps another make theirs a bit more bearable.

      Delete