Wednesday, August 20, 2014
The anti-inflammatory diet study started the 17th so I've been on it four days so far. I've noticed a few changes thus far.
My appetite is decreased, I feel fuller with less food and fewer urges to snack. I've been going to the bathroom more regularly. As you may recall from earlier, I haven't required my Lonox for over three weeks now because I had been very sluggish, even constipated feeling. I still am not requiring my Lonox but I'm not feeling so bloated, sluggish like.
I've lost six pounds, mostly water weight I'm sure. I've lost so much this week that a co-worker asked to be put on the diet too! I did require a potassium pill tonight but my potassium was low at my last lab draw a week ago so I wasn't surprised by the cramping. I'm just grateful I'm not requiring 9 potassium pills a day anymore, those suckers are huge.
Finding foods to eat hasn't been difficult even though it is restricted. I actually have too much food I can eat in my fridge and I'm afraid I won't be able to eat it all in time so I'm being mindful of possible need to freeze some food lol. I was very grateful when my mom brought me some homemade salsa as I'm not allowed store bought because most of it has forbidden ingredients. My frittata wouldn't have been nearly as good without my mom's salsa! I've even told my husband he can't have any of my mom's salsa lol!
The hardest thing to give up though has been coffee. It's not because of the caffeine either. Caffeine doesn't seem to effect me, I drank 11 cups of coffee and then went to bed 30 minutes after my last few cups one night. Didn't have a problem sleeping at all. No, it's more the sensation of coffee, the flavor, the feel of it on my tongue and filling my stomach. Cold or hot, I really enjoy coffee beverages and they've been a nice treat and even a filler when hungry. I miss it :(
I hesitate to say my sleep is better because my sleep goes in cycles since I stopped taking gabapentin and I could just be in a good cycle right now. My energy level hasn't increased but I've been sleeping soundly and not having difficulty falling asleep this week.
Overall the diet hasn't been bad. It's amazing the will power I have to follow a strict diet when it's really important to me. Besides currently, I've only followed strict healthy eating practices for my wedding and professional photographs. Lol. But I would consider research for us FAP'rs to be highly important and I'm appreciative to have been selected for the study.
Saturday, August 16, 2014
Tomorrow is the day, I start the anti-inflammatory diet for the pilot study. 14 days to be exact. I'm very eager to see how the diet effects me and at the very least I'm looking forward to eating healthier again and shedding a few pounds. Beyond that, I'm really hoping to notice a change in my sluggish feeling I've been having for about three weeks now, as I previously discussed last time.
I've reviewed the materials I am to follow and completed the health questionnaire rating my symptoms of the last month and family history. Boy, when you have to rate and score your different health symptoms you quickly realize what areas really bother you. To no surprise, gastric and stool symptom areas were most bothersome but my sleep and head symptom areas really surprised me.
Basically, for the diet I'm to avoid all gluten, soy, dairy, sugar, corn, caffeine, alcohol and additives. If I stick with fresh, unprocessed foods I'm good to go. Fresh vegetables except for corn, fresh fruit and meats will be my foods. I'm to limit beef and pork though, I can have rice and quinoa. It shouldn't be too difficult as long as I don't eat out. Although you can eat out, it sounds like it'll be more of a hassle than cooking at home so I'll be limiting restaurant meals.
I already try to limit carbs and starches in order to maintain my weight but I've also noticed that carbs, which most contain gluten and will be eliminated by this diet study anyway, seem to feel heavier on me and increased bloating. I don't have celiac and I've read that removing gluten from your diet doesn't have any effect on you unless you have celiac disease. I'm skeptical that gluten itself will have any effect on me but I, personally, suspect it's the carbs themselves that cause the negative symptoms for me. But, I'm not an expert and I'm not really concerned if it's the gluten or not. Just a personal observation and reasoning I've come to.
I'll be updating you with my experiences, symptoms and conclusions. Who knows what will happen but I'm ready to find out!
Tuesday, August 12, 2014
So a weird thing has been happening for over two weeks now. I had a really bad food week where I ate junk food out for at least one meal a day. Now this usually makes me bloated, sluggish, even constipated feeling but once I start eating healthier the diarrhea comes back in full force. My guess is trying to rid my body of the unhealthy junk and rebalance itself. But I've started eating healthier after that week, although some days were worse than others. But yet, I still feel sluggish enough that it's better not to take my Lonox. And on days that started out normal and I did take my Lonox, it ended up a mistake as I became too constipated again. So I haven't taken it regularly for two and half weeks. This is longest I've gone without my Lonox. And I'm on the lowest dose as it is, I used to require the highest dose!
Now I'm not about to suggest for a moment that I no longer need the lomotil. I actually think if I strictly ate healthy, I'm certain everything would return to usual. But I am confused why it's not back to normal already, even with the sparse unhealthy meal.
I'm excited to see though how my bowel will act once I start an anti inflammatory diet pilot study through the Hereditary Colon Cancer Foundation. I'm very curious to see if I notice any changes with quality of life and symptoms. I'll be sure to discuss my results and experiences with you all as well. The HCCF is hopeful for clinical trials of the diet to be approved for further research. It will be very interesting to hear what results they gather.
Hopefully in the meantime my bowel will resume usual function so that I'll feel my "normal" again lol. I really prefer the diarrhea and empty, light feeling it provides to the constipated, heavy, bloated, overall yucky feeling. Some might disagree but I've become accustomed to my SBS.